Today, 24th April 2017 marks 18 months of being unwell. Honestly, it feels like forever. The journey started with the sudden onset of tremendous debilitating pain, unable to stand for longer than a few seconds, to being diagnosed with Poncets Disease (a rare form of Tuberculosis) – despite no positive result for TB but some dodgy chest CT scans and unexplained symptoms ended up swinging it (plus there were no other plausible explanations), I was on anti-TB medication for 9 months. It was now September 2016 – the pains hadn’t gone. The type of pain had altered, but the pain did not go. Another couple of months passed and I was then diagnosed with probable Lyme disease, which now has almost been ruled out (still keeping my fingers crossed). I now have a new diagnoses – Joint Hypermobility Syndrome with Autonomic Dysfunction. Very heavy words.
After all the drugs, steroids, physiotherapy, rest, extreme diet change, trying to work, meditating,… I’m mentally stronger, but I’m just highly bored of this health chatter. My body is bored too…and I believe, if my walking sticks could talk, they’d tell you how bored they are.
How long more will it go on for? I don’t know, but it’s a slow, long, arduous process. Will I get to the end of it? Of course I will. As I say, I’m built to fight – I may look petite and fragile, but I’m quite mighty on the inside. No I’m not Mighty Mouse… but close enough!!
Hope you are all well. Stay fit, don’t ignore any pains – be it with the body, a person or a situation. Tackle things head on – it’ll help you heal quicker.